Dementia is a term given to a group of symptoms from certain diseases which affect the brain. Alzheimer’s disease is the most common cause of dementia. In the UK, there are about 850,000 people living with dementia. If you know of any other groups or services not listed here, please let us know.
Local Dementia Support
There are 3 Safe Havens in Burgess Hill town centre, located at:
Market Place Shopping Centre
Burgess Hill Town Council’s Help Point at 96 Church Walk
Burgess Hill Library
The Safe Havens provide dementia awareness trained staff and a quiet place for people affected by dementia to receive help and assistance, for example, help with orientation, transport information or locating a mislaid person or belongings.
Information and Advice
Alzheimer’s Society provides information and support, funds medical and social research, and campaigns for better quality of life for people with dementia and greater understanding of the condition. Support in West Sussex includes support groups, advice and guidance. The Alzheimer’s Society also run a National Dementia Helpline, contact 0300 222 1122, and Talking Point, an online forum for people with dementia and their carers.
Dementia UK provides specialist dementia support for families through its Admiral Nurse Service.
Know Dementia is a local charity providing advice and support for people who have been diagnosed with dementia.
The West Sussex Joint Dementia Strategy has been developed in partnership with the NHS West Sussex Clinical Commissioning Group (CCG), Social Care, District and Borough Councils, and Community and Voluntary providers, and includes direct input from people with the lived experience of dementia.
West Sussex Library Services provide a number of services and resources for people living with dementia, including Reminiscence Packs, Reading Well Books on Prescription, Memory Management Library Card and more.
Support Groups and Social Activities
Carers Support West Sussex have a range of Online Support Groups including a Dementia Support Group. View more information on the Carers Support West Sussex website.
Burgess Hill and District Rotary Club run Memory Sing-a-Longs with free tea and cake for people living with dementia and their carers. Visit their website for details on upcoming sing-a-longs.
The Forget-Me-Not Cafe is held fortnightly on Mondays at the Spire Cafe, St John’s Church for people living with dementia and their carers. Contact 01444 230499 or email email@example.com.
Meeting Point welcomes people living with dementia and their carers to drop in for refreshments and chat each Saturday, from 10am – 12pm, at the United Reform Church, Junction Road, Burgess Hill.
De-Cafe is an evening group for people living with dementia and their carers, based at the Pauline Thaw Centre, Dale Avenue, Hassocks.
Neil’s Club is a group for people with young or early onset dementia, run by Crossroads Care South Central, meeting alternately at the Beech Hurst Harvester in Haywards Heath and Balcombe Social Club.
Crossroads Care South Central provides a tailored service of respite support for carers across West Sussex including an emergency respite scheme.
Forest View Care Home in Burgess Hill provides respite day care facilities.
Support and Services for Carers
Burgess Hill Carers Support Group is a peer support group provided by the Alzheimer’s Society, giving carers the opportunity to meet with others in a similar situation, based at The King’s Church.
Carers Emergency Alert Card is a credit-card sized laminated card which will identify you as a carer if you are out alone and become ill or have an accident. The scheme is free of charge for West Sussex residents.
Carers UK Digital Resource for Carers brings together a wealth of information and resources designed to support those looking after a loved one who is older, disabled or seriously ill.
Carers Support West Sussex provides information and support for friends, families and partners of people with a long-term health condition including memory loss and dementia.
Jointly is an app that makes caring for someone a little easier, less stressful and a lot more organised by making communication and coordination between those who share the care as easy as a text message.
Neighbourly Care is a support and befriending charity run by volunteers providing practical help to people of all ages experiencing or caring for someone with illness, frailty, disability, social isolation or a sudden crisis.
Pamper Day for Carers is an annual event held at Burgess Hill Girls school, and is free for any local resident who provides unpaid care to a family member or friend. Look out for the next date in the local press, the Town Council’s About Town Magazine, website and social media.
Sussex Community NHS Foundation Trust Carers Health Team can offer support for carers over the age of 18 registered with a West Sussex GP.
Chichester Careline partner with Mindme to provide GPS devices which can be worn by people with dementia, giving carers peace of mind and users more freedom.
In the event of someone with dementia going missing, you can report a missing person with Sussex Police.
The Helping Hand card is a scheme being operated by local bus companies including Brighton & Hove Buses, Metrobus, Southdown PSV, Compass Travel, Stagecoach, Big Lemon and Sussexbus. The free card enables passengers who may need extra assistance to discreetly explain the help they may require without having to verbally communicate it.
Gatwick Airport provide advice and support for passengers with hidden disabilities and their families or carers travelling through Gatwick, including a Hidden Disabilities lanyard which can be obtained at the airport.
M4D radio is a new radio station for people living with dementia. The station plays 24 hours a day and 7 days a week and you can choose what era of music you want to listen to. Tune in at m4dradio.com.